Tuesday, January 29, 2013

PLASTIC SURGERY VISIT

we will be going to see the plastic surgery doc today to discuss possibilities for carina, will write later on what the scoop is.

Carina still doing well thank the Lord. Her left arm pit i believe is still swollen, however overall she is doing well.
today is sunny and cold

Saw plastic surgeon: He said plastic surgery is not a miracle cure. We will think about cutting out the small swollen area under her left arm pit however will try and see if Acutane will help first. Plastic surgery would require taking skin from front of leg and grafting skin to arm pit area if they couldnt pull skin in that area enough to close it. carina did not seem happy with that. So all in all we will wait on that, maybe that will be the last resort. We also were told that it is common to see that when they have cut out an area, another area will appear with HS.

Saturday, January 26, 2013

SMALL SEIZURE

carina had little seizure friday morning. She had taken her medicine. She did work out late the night before. Skin doing ok thank the Lord! She is still getting headaches, need to get drops. Today she went up with young people on trip to snow. Sky is sunny but cool. She has been going to the tanning booth however doesnt seem to helping her chest, or other areas.
Found out carina didnt take morning med thats why she had seizure

Thursday, January 17, 2013

MEDICAITON LIST

List of meds taking currently:
Kepra - seizure - everyday 2x daily
Flucanozole - 1x weekly 12/12
eye drops- late in 2012 zilet
rimfampin - 11/11 due to HS
List of meds taken this past year:
Dec - flucanzole - 1x daily for about a week then after 1x weekly for about 1 month or longer
ADAP Tylenol - dec- for pain-about1 week or so
clendomyacin - no longer taking - 11/12-12/12
inflammatory formula and headache/pain formula by Quantum (herbal) 3/4 tube  daily

Topicals:

UCD Mind Inst

Jan 10 went to UCD Mind Inst. Met with a young doc Dr Lozano he was from mexico and his young assistant. Well she did a write up asking questions, family history etc. Then the doc came and talked with us. He things carina might have KIDS Syndrome which there are like 5 or 6 symptoms that are she has that are related to that syndrome. He was very nice and seemed very helpful. I was very thankful how he said she can take some blood tests which can identify other things. We will have to go back to him and see what happens.

ENDOCRINE DR

1/16/13
Went to endocrine doctor Dr Phatak in Rocklin. SHe is going to have carina do a blood test to test her cortizole levels again. Her initial blood work from Dr Larsen showed a low cortizole level which   controls the steroids in your system and if there is not enough when a major stress happens like maybe a car accident or something else tragic you can die because your body cant fight strees. So the doc ordered a new test to be done.
1/17/13 got blood work done for carina for acutane and other things.
carina is currently doing ok. She has acne on face and chest, a lump under left arm pit, and is doing ok down in vaginal but still is a little crusty. Last week she had laser hair removal done on both arm pits by dr larsen. It was painful she said, doc said next time they can put a topical which can numb the area. It smelled like burnt hair. SHe was sore for about the next hour or so but then recovered quickly. They gave her ice packs to put on her arm pits.
She is not eating cereal w/milk currently but is still eating breads and occassional cheese but I have to remind her not to and I have to remember also. Need to keep her off of milk but she needs to try also.
The weather is very cold 36 degrees in morning but sun is out. She has been going to the tanning booth and also going to the gym. SKies are clear and no clouds. She has been up snowboarding and hasnt had any problems except for her leg. When @ endocrine doc her left are was on fire. Headaches seem to be doing better also.


Sonal Phatak MD
550 W Ranch View Dr
Rocklin, CA 95765
(916)295-5700